
Megan Michelle Leaf

Obituary
🩷 It is with deep sadness that we share that Megan Leaf passed away on June 14, 2026.
Megan passed away peacefully, with her parents by her side, following a severe intracranial brain hemorrhage. She is survived by her parents, Michael Leaf and Deborah Thomey Leaf, and her sister and brother-in-law, Brigid Leaf and Mohan Chanila. She is also survived by many Thomey family and Leaf family aunts, uncles, and cousins.
Meg will be remembered for her kindness and generosity. Meg was an organ donor, and she left the majority of her savings to the Children's Tumor Foundation and to Johns Hopkins University Department of Neurology to benefit Neurofibromatosis research. Throughout her life she was an advocate and a fundraiser for Neurofibromatosis awareness and finding a cure for NF. When she was in school, she was recognised with several national volunteerism awards for her Love Box charity that created and delivered care packages to patients at the Johns Hopkins Children's Center. She also participated in the Children's Miracle Network Telethon, which raised funds for Johns Hopkins Children's Center.
Megan was diagnosed at age 4 with Neurofibromatosis Type 1 (NF1), a genetic disorder that can result in tumors, and became a regular patient at Johns Hopkins Hospital. She lost the vision in her right eye due to an optic glioma, and at age 13 had brain surgery to remove a tumor in her cerebellum. In 2018, she suffered a stroke and was again a patient at Johns Hopkins; she suffered a second stroke in 2024.
Meg worked very hard in physical therapy and occupational therapy after both strokes to recover her mobility and continue her hobbies. She loved to play miniature golf, card games, and board games - and she was usually the winner of family game nights. She also engaged in therapeutic horseback riding in Maryland and in Florida. Meg enjoyed making arts and crafts and baking for her family, friends, doctors and therapists.
Meg will be greatly missed by her family and friends.
• Please feel free to share your memories and photos of Meg by contributing a message to the Posts ~ Memory Wall section below.
• A Celebration of the Life of Megan Michelle Leaf will be held on Sunday, August 2, 2026 1pm-4pm at The Liriodendron in Bel Air, Maryland (details in the Event ~ Celebration of Life section below, where you can also RSVP).
Donations
🩷 If you would like to make a donation in memory of Megan, she would encourage donations to one or both of the below beneficiaries:
♡ Children's Tumor Foundation ("Ending NF Through Research") #EndNF
♡ Johns Hopkins University, NF Program Within Neurology School of Medicine (designate the NF Program and Dr. Jaishri Blakeley and in memory of Megan Leaf)
Click the link below to go to the organization donation page:
Timeline
Gallery
Memory Wall
Pam & Jerry Schiavino, CHC 69’



Your family is in my prayers.
Megan Michelle Leaf was born at Harford Memorial Hospital in Havre de Grace Maryland on Saturday, February 7, 1981. She was the daughter of Deborah Lee Thomey Leaf and Michael Emmett Leaf and younger sister of Brigid Amanda Leaf. Megan and Brigid stayed very close sisters as adults, even though Megan lived in Maryland and Florida, and Brigid lived in New York City and London, England. Meg especially enjoyed a sisters’ trip to London.
Megan was a bright, adventurous, playful child who would say a bouncy “See ya tomorrow!” to end each day and a joyful “Good morning!” to greet each day as she woke up. Megan enjoyed gymnastics as a Tumble Bee, rode her own horse ( Blossom) on the family farm in Forest Hill , and was active in 4-H. Meg and her West Highland Terrier Molly won the dog obedience class Blue Ribbons at the Harford County Fair and the Maryland State Fair. She was a early and avid reader starting with her itty-bitty-book light in bed and her favorite character was Anne of Green Gables. She even finagled a family trip to Prince Edward Island, the home of Anne, her long held dream trip.
At four years old, her Free State Montessori School teachers informed Deb and Mike that Meg was bumping into things— including other children. This led to a local eye examination and immediatel referral to the Wilmer Eye Institute at Johns Hopkins Hospital. The doctors at Hopkins determined that Meg had an optic glioma as a result of neurofibromatosis (NF), a genetic disorder that can spawn tumors anywhere in the body. Megan received radiation treatment at Hopkins for the optic glioma but still lost all sight in her right eye. She received lifelong treatment for her neurofibromatosis and received semi- annual MRI’s throughout her life to determine if any new tumors developed. When Meg was 13, it was discovered that she had a brain tumor in the cerebellum which was successfully removed by Dr. Ben Carson at Johns Hopkins. That was just after she returned from a People To People Student Ambassador Program summer trip to Europe that included kissing the Blarney Stone – which may partly explain her speedy speech recovery after brain surgery.
Meg was a frequent overnight patient at the Johns Hopkins Children’s Center. Inspired by her boredom during her hospital stays, at age 10, Meg started Love Box, Ltd, a charitable corporation, to collect donations for shoe boxes filled with crayons, coloring books, toys and a Teddy Bear for patients at the Children’s Center. Megan decorated and assembled the Love Boxes and she and her mom Deb travelled 30 miles each way to deliver the Love Boxes to the Johns Hopkins Children’s Center on a monthly basis. For her work and contributions , Meg received national volunteerism awards from Pizza Hut, Prudential Insurance, and J.C. Penney. She also received a Governor’s Citation from William Donald Schaffer (Governor of Maryland), trips to Dallas and Disney World, and a White House visit where she, her parents and other award winners met President Clinton.
Meg became involved in the annual John Hopkins telethon. She served as co-chair and appeared and discussed neurofibromatosis on the broadcast of the annual Children’s Miracle Network telethon.
Meg, who loved school, attended Free State Montessori School, Forest Hill Elementary School, Fallston Middle School, and graduated from Bel Air High School in 1999.
Megan loved theater and performing. Her early performances included an elementary school talent show skit with her sister, Fiddler on the Roof at Phoenix Festival Theater, The Nutcracker, and shows at Saint Margaret’s. Megan performed as the Wicked Witch of the West at Fallston Middle School and was a member of the Bel Air High School Drama Company. She and her sister also learned a lot of musical theater showtunes from their mom.
Meg was a devoted advocate for Neurofibromatosis awareness and for finding a cure for NF. As a middle schooler, she wrote a speech about Neurofibromatosis and presented it to members of Lion’s Club, Rotary, and other organizations, usually at breakfast meetings before school. Megan was a tireless supporter of NF research and was a top fundraiser in many NF walks. She even convinced her parents to walk in several of the “Cupid’s Undie Runs” an annual event held near Valentines Day to benefit the Children’s Tumor Foundation. ( Her parents enjoyed the warm February walk in St. Petersburg , Florida much more than than the frigid February walk in Baltimore…) Megan spearheaded a New Years Eve gala at the Liriodendron Mansion organized by her parents and a dinner event in Little Italy to raise money for CTP and frequently solicited donations on Facebook.
Megan always loved working with children. She volunteered in her mom Debbie’s kindergarten class, and she and her sister had summer jobs as counselors at the John Archer Summer Camp for special needs children. She pursued her goal of working with children by attending Adelphi University in Garden City, New York and Wheelock College in Boston, graduating with a Bachelors degree in 2004.
After graduation from Wheelock College, Megan achieved her goal of working with children. She became employed as a para-educator by the Baltimore City Public Schools, and earned her Masters degree from the Notre Dame of Maryland University in Baltimore. She loved working at Roland Park Elementary Middle School for several years and then at Windsor Mill Elementary. She lived alone in Baltimore for 10 years in an apartment at 25th and St. Paul Street. Never able to drive because of her vision, she navigated Baltimore City on foot or by bus, cab, or mobility services. Due to deterioration in her condition, Meg accepted disability retirement in 2016.
Megan suffered a stroke in 2018 and was a patient at Johns Hopkins Hospital for one month. For a few days after her stroke, Megan could not speak at all but she and Brigid could communicate by America Sign Language which Debbie had taught them as toddlers. After completing in-patient rehabilitation, Meg moved back to Bel Air to live with her parents Deb and Mike and continued her recovery.
Deb, Mike and Megan visited Florida for winter visits 4 years in a row. In 2022, they stayed in Sarasota for three full months of January, February and March. Meg especially enjoyed the therapeutic horseback riding, pool , Gulf beaches and mini golf available in Sarasota. When it was time to pack up to return to Maryland, Megan said “Why do we have to go back to Maryland? Why don’t we stay here?” Mike and Debbie, who had never thought of living in Florida, agreed and they all moved to Lakewood Ranch in the Sarasota-Bradenton area.
Meg enjoyed the Florida lifestyle and activities, but suffered a second stroke on January 1, 2024 which significantly affected her mobility and balance.
As a stroke survivor, she was dauntless, and worked extremely hard in physical therapy and occupational therapy to recover her mobility and be able to continue her hobbies. She loved to play miniature golf, card games, and board game but most enjoyed winning the pot at Bingo. She also engaged in therapeutic horseback riding in Harford County and in Florida. Meg loved embroidery and other arts and crafts and baking, and bestowed her works and goodies as gifts to friends (especially her doctor and therapist friends) and family. Meg was always a reader. She read book after book after book; when dinner was ready would often say “let me finish this chapter!”
Megan was friendly to everyone, and a caring friend.
As a 6 month old infant, Meg was introduced to her first lifelong and closest friend, Miss Irma (Maged), who cheered and supported Meg through her childhood and adulthood. Meg and Miss Irma would often go to the movies and every trip included a stop at Friendly’s in Harford Mall for ice cream sundaes.
Meg met her very close friend Rachel Greene when they were students at Wheelock College. Even though Rachel lived in Buffalo, New York, she and Meg kept in touch and visited each other over the years, with their last visit in Florida in 2026.
Megan remained a friend of some of her teachers. Megan had a special relationship with many of her doctors but most especially her neuro-oncologist Jaishri Blakely, M.D., the Marjorie Bloomberg Tiven Professor of Neurofibromatosis at the Johns Hopkins School of Medicine. Megan was extremely happy to reunite with Dr. Blakely in Florida when she attended an NF symposium in Tampa.
On June 13, 2026, Megan was the victim of a severe intracranial brain hemorrhage. She passed away peacefully the next day with her parents by her side.
Megan was an organ donor, and she directed that the majority of her savings go to Johns Hopkins University, Department of Neurology, to benefit the Neurofibromatosis research of Dr. Jaishri Blakely and to the Childrens Tumor Foundation. Meg would encourage you to donate to one or both of these beneficiaries.
A Celebration of the Life of Megan Michelle Leaf will be held on Sunday, August 2, 2026 from 1 to 4 PM at the Liriodendron Mansion, 502 West Gordon Street, Bel Air, Maryland. Fittingly, the Liriodendron is the summer home built for Dr. Howard Kelly, a surgeon and one of the 4 founders of the Johns Hopkins.
Family tree


